What is Shaken Baby Syndrome?

Each year in the United States alone, medical treatment is sought for an estimated 1,400-1,600 babies who have been shaken. Don’t let your child become just another statistic! Tell everyone who cares for your child “Never shake a baby!”

Wednesday, March 23, 2011

Gavin's Story

Gavin was born on October 14th, 2009 at 6:14 pm. He weighed 6 lbs 10 oz and was 19 inches long. He was perfect. He was a healthy beautiful baby boy. Gavin was a happy baby. He always ate well, sometimes more than you would think an infant that small could eat. He took naps throughout the day like any other baby and only woke up at night to eat and then fell back asleep fairly quickly afterwards. He hardly ever cried and when he did he sounded more like the Aflac duck, than a baby crying. He was almost always quickly comforted with a new bottle or his favorite orange binkie he had had from the day he was born. He was what most people would consider an easy baby. His smile could easily light up the entire room and having him fall asleep on your chest was the best part of any day.
On December 21, nine and a half weeks after Gavin was born, we all got a phone call that you never want to get. Gavin was being rushed to the hospital in an ambulance because he wasn’t breathing. Members of the Appomattox Rescue Squad responded to the 911 call and we were later told it was one of their quickest response times ever. They performed CPR at the scene and kept Gavin stable in their transport to Lynchburg General. After arriving at the hospital, we all sat in a small waiting room where seconds felt like hours. We were then told Gavin would need to be transferred to Roanoke Memorial. I never knew Roanoke was so far away. That drive took several days at least. After arriving at the hospital, we were taken into another waiting room and sat down with a leading doctor in the NICU. There are many events from this story that will forever be etched in my memory but those few moments listening to that doctor tell us what had happened to Gavin that day will always be in the forefront of my mind. She told us Gavin had bleeding on his brain that was caused by a traumatic brain injury. She also told us the retinas of his eyes were detached and there was blood pooled behind them as well. She went on to tell us that this brain injury had in no way been caused by any type of accident. It was only later that the term “Shaken Baby Syndrome” was used to describe what had been done to Gavin.
The next six weeks that Gavin spent in the NICU at Roanoke Memorial are somewhat of a blur.
The first several days were the most critical. Gavin had several bouts of seizures and for the most part, was completely unresponsive. He was on a ventilator that was doing most of his breathing for him and he was being fed through a tube in his nose. Walking into his room for the first time was extremely difficult; seeing him lying in that big bed, so tiny, hooked up to several different machines with tubes and wires coming from all parts of his body. It’s an image that I will never forget. However, with each passing day, we were given more and more hope. On the 23rd, Gavin opened his eyes and moved his arms and legs a little bit. By Christmas Eve, he was breathing more on his own. Gavin spent his very first Christmas where no child should, lying in a hospital bed fighting for his life.
On December 26th, another tragedy struck the family hard. Gavin’s uncle Cody was killed in a car accident. While it all seemed practically unbearable, I believe God needed an angel to watch over Gavin and he chose Cody to do just that. Just a couple days later when Gavin was being talked to about Cody, he smiled for the very first time since being in the hospital. I truly believe Cody talks to Gavin and will always watch over him. By the first of January, Gavin was moving his arms and legs a lot. We were told it was the nerve damage causing his movements but we were just so happy to see him active. However, it was around this time that the leading neurological doctor in the NICU told us what she believed the outcome for Gavin would be. She said it was very likely that because of his brain damage, Gavin would never be a normal child. He would not meet developmental milestones. He would probably never walk or talk. It was very possible he would be blind and deaf forever. And there was a chance he could be in a vegetative state for the rest of his life. This was the most devastating news you could ever be told about someone you love. What else could we really do but put our faith in God and pray that this would not become a reality.
On January 6th, Gavin had surgery to have a trache put in for him to be able to breathe on his own and a feeding tube put in his stomach for him to able to eat. At this point, Gavin had no gag reflex nor could he swallow properly so the trach was necessary so we could suction his airway for him to breathe. After this surgery, Gavin’s face was tube free and it was a beautiful sight to see. On January 14th, Gavin was moved out of the NICU and to Kluge Children’s Rehabilitation Center in Charlottesville. This was very exciting as it showed Gavin had improved enough to begin therapy. Within the month he spent at Kluge, Gavin showed improvements working with his speech, physical, and occupational therapists every day and we learned to celebrate the small successes. Around this time, the doctors at UVA re-examined Gavin’s MRI scans which showed that he had older brain injuries that occurred before December 21st. They told us that Gavin had been shaken on a total of three to five different occasions. Because of this information, the investigation of Gavin’s injuries is still on-going. On February 12th, Gavin was released from Kluge and came home to his foster parents, his great-aunt and uncle. Patricia and Floyd Wood are who I consider to be two of Gavin’s angels as they are now his adoptive parents and quite possibly the best thing to ever happen to Gavin.
As of today, Gavin is a lively and extremely happy 16 month old. He can see perfectly fine. He hears everything that goes on around him. He smiles constantly. He even laughs when something is funny and I mean belly laughs to the point where he can hardly catch his breath. Gavin still has his trach and feeding tube; however, there is talk of possibly removing his trach sometime this year. He also has a button to place over his trach so he is now able to make noises, which are pretty much some of the sweetest sounds I’ve ever heard. Gavin is able to roll over and has enough head control to be able to sit in a specialized chair by himself. He is being fitted for leg braces and a chair for him to be able to stand up and hopefully walk one day. He is doing everything in his power to prove that doctor in Roanoke completely wrong. Gavin is nothing short of a miracle. He is one of God’s miracles.
Gavin has been a blessing in my life. I know he was placed in my life for many different reasons but I strongly believe that the main reason was to show me how amazing and powerful God truly is. Gavin, a nine week old baby, brought me closer to God. He made me believe. He showed me the true meaning of faith. Even in the worst of situations, especially in the worst of situations, God is always there with you. He has a plan for your life. And He will never leave you. Throughout all of this, I have come to rely on the Bible verse of Jeremiah 29:11 “For I know the plans I have for you, plans to prosper you and not to harm you, plans to give you hope and a future.” Because of this verse, I know God has a beautiful future planned for Gavin and for each one of us.
While I came here today to give this testimony to God, I also wanted to use this opportunity to educate you about Shaken Baby Syndrome. In America every year an estimated 1,200 - 1,400 children are shaken for whom treatment is sought. Of these tiny victims, 25 -30% die as a result of their injuries. The rest will have lifelong complications. Long-term consequences can include learning disabilities, physical disabilities, visual disabilities or blindness, hearing impairment, speech disabilities, Cerebral Palsy, seizures, behavior disorders, cognitive impairment, and even death. Often, perpetrators shake an infant or child out of frustration or anger. This most often occurs when the baby won't stop crying. I ask you today, please, if you ever get frustrated while holding a child, place them in a safe place and walk away. Take a few moments. Take some deep breaths. Do whatever you need to do to calm down before picking the child back up. It only takes a few seconds to permanently injure a child and change their life forever. It also only takes a few seconds to share this information with someone you know. Thank you for listening.

~Jenny

Saturday, March 12, 2011

Coming Home - By Steffany DeWitt

Families, Friends, and Supporters

I wanted to take this time to let you all know what is going on with me. As I am very happy and believe strongly in this network, I am taking the time to step back from the network for a while due to things that are coming up in my life right now. As some of you may not know, my husband Michael is currently deployed to Afghanistan and has been gone since March of 2010. I have not seen him but all of two weeks in the past year. Although, the network is very important to me, I have decided to step back and take the time in welcoming home my husband and get our life back together as it was before. Michael and I were married in November of 2009, and were only able to spend 5 months together before he deployed. Before we were married, due to him being in the Army we were only physically together a week. Right now I believe I need to take the time and focus on my family. As the network is very important to me, my husband and son are the most important things in my life right now. I am very excited to finally get to welcome home my husband. I am not leaving the network permanently; I am just stepping away for some time.

Although a lot of work has been done and I have been grateful enough to help, I unfortunately will be unable to attend the candlelight vigil this year. I will miss meeting you all, but I will be there in spirit. I am so happy that I have been able to help out with funding this year to the vigil and hope to return soon so we can get working on next year’s vigil as well.

I want to thank all of you for opening your arms and hearts for letting me be apart of a wonderful family. We all have been there for each other through thick and thin and my return will be better than ever. Again, know I am not leaving forever, just stepping away to take time for my husband, our son and myself. I am very excited to see what our future brings and hope to return to the network better than ever.


Thank you everyone!!

Steffany DeWitt
Mother to Dominic DeWitt-SBS Survivor

Friday, March 11, 2011

Dreams of a Princess - Chance of a Lifetime!

Family and Friends,

As you all know, on February 19, 2011 my best friend and love of my life proposed to me. Through heartache, grief, loss, and the tragic death of my daughter Madilyne, I never knew my heart could love as it does today.

I moved to Little Rock from Florida in July 2009, after the great travel from FL to NYC to Arkansas, to journey on my life path to make a life from the dreams within my heart. After dedicating all of my heart, my time, and my effort into the Legacy presented by the beautiful life of Madilyne, I am thrilled to share this news with all of you concerning our engagement. An opportunity of a lifetime has presented itself to us, and wanted to ask for your help.

Jamie and I have entered this contest for a chance to win $100,000 for the wedding of our dreams with a celebrity wedding designer from Crate and Barrel! This is so exciting, but short notice, and will only take you 2 seconds to vote. Simply click the link below which will take you to our page on their website and click vote. One vote per person, and please pass along to all you know! We need at least 3000 votes in the next 20 days to be in the top 100 that will go to a judging panel and winner will be announced in June 2011!

This is very exciting as an opportunity to not just have the wedding of our dreams, but also have ALL of our friends and family in attendance as this will help with travel accommodations for those near and far!

Thank you for your vote and keep passing along, we don't usually ask for something as such but this would truly be such a blessing for not only us, but for the memories we hope to share with everyone in March 2012!

Here is the link - http://www.ultimateweddingcontest.com/entry/153006

Love you all!
Jamie and Rachel
Mother to Madilyne <3 SBS Victim Age 10 months

Friday, January 21, 2011

SBS T-shirts and Merchandise Now on Sale!




Hello!

Just wanted to post a quick blog note to all of our readers to let you know that the 5th Annual Shaken Baby Syndrome Candlelight Vigil t-shirts and merchandise is now on sale on our website! This year we added long sleeve shirt options, as well as a few new items as well! Be sure to stop by our merchandise page at www.shakenbabysupport.com and help fund family's travel expenses to attend this years vigil in Sarasota Florida April 15, 2011 at 7pm. No contribution is too small be it donation or by purchasing merchandise. We need YOU to make this our biggest and best vigil yet! More information is available on our website as well concerning this event!

Sponsorships are available as well by contacting Rachel, at rachel@sbssupportnetwork.com. There are MANY levels as well as services needed. Please take a moment to read the letter below concerning this years event!

________________________________________________________________________________

Light the Sky

5th Annual
Shaken Baby Syndrome Candlelight Vigil
Sarasota, Florida

You are cordially invited to the 5th Annual Shaken Baby Syndrome Candlelight Vigil in Sarasota Florida, April 15, 2011 7:00p.m. Suncoast Family Life Center, 8000 Hawkins Rd, Sarasota Florida 34241. This year we are gathering the top advocates in Child Abuse and Shaken Baby Syndrome Prevention to speak to the families affected and the general public to bring attention to the severity and increasing cases of Shaken Baby Syndrome in our nation today.

On April 15, 2011, SBS Survivors and Victims families will fly in from across the globe to attend this event.

The mission of the Annual Candlelight Vigil is to bring together families with shared circumstances and raise awareness about Shaken Baby Syndrome. Information regarding medical treatment and therapy assistance, as well as information on how to handle grief will be available to all who attend. This event also works to establish a support system for families of SBS victims and survivors. By linking families together who have shared this traumatic experience, we can help each other to learn, to grow, and to prevent this from happening to other innocent children.

The Shaken Baby Syndrome Support Network Inc. are asking you to empower victim and survivor families and sponsor a family waiting to attend or donate items needed to ensure this vigil is a great success. Together we can help families dealing with extreme life changing events to comfort their hearts so they can maintain a life unforeseeable after the tragedy of Shaken Baby Syndrome has come forth in their lives.

For the families ongoing healing and support process, Child Abuse and Shaken Baby Syndrome Advocates from across the United States will be present for this event to speak to the families and provide insight into the steps for a healthy transition as these families walk through the grief, and anger associated with this tragedy.

We invite each and every one of you to meet these families April 15, 2011 in Sarasota Florida at the 5th Annual SBS Candlelight Vigil. The Network welcomes speakers to include, Major Connie Shingledecker - FBI National Academy 185th Investigative Bureau Chief Manatee County Sheriff's Office, Christina K. Farnsworth – Victim Advocate Coordinator Sarasota County Sheriff’s Office, Darryl Gibbs – educator, lecturer, and legislative advocate Founder Cynthia Gibbs Foundation and Victim’s Advocate- Homicide Specialist for the Westchester County District Attorney’s Office in New York State, Scott Juceam – Father to Hannah Rose Juceam, and Founder of the Hannah Rose Juceam Foundation, Janet Goree – Grandmother to Kimberlin West and early childhood educator/SBS Advocate, Patrick Donohue - Father to Sarah Jane Donohue and Founder of the Sarah Jane Brain Foundation, and many more to be announced in the coming months! We hope to see you there!


Registration and Sponsorship forms are attached for your use and please visit our website for additional information. http://www.shakenbabysupport.com

We thank you for your support, and please call with any questions or additional information at 877.571.4675 or email rachel@sbssupportnetwork.com

Sincerely,


Rachel A. Sumner
Shaken Baby Syndrome Support Network Inc.
Founder/CEO

Tuesday, January 11, 2011

Now Taking Child Names for Vigil T-shirts! (AWESOME OPPORTUNITY!)

(consent form enclosed at the bottom. Please read ALL information prior to submitting request)

We are currently taking names for our 2011 5th Annual Shaken Baby Syndrome Candlelight Vigil. These t-shirts display the names of victims and survivors. This consent form must be submitted by emailing angela@sbssupportnetwork.com. Due to privacy reasons, this has to be submitted by the parent, grandparent, or guardian of our hero. We will continue to take names until January 30th, 2011 but only have a limited about of spots on the t-shirt. You will not receive a confirmation email unfortunately, however you can check the t-shirts as always on our website, blog, FB group page, or through our member page on our website.

Each year we gather names for our t-shirts and this is a first come first serve basis. The names are placed on the t-shirt in *no* particular order, as we usually in the final proof, list in the order of alternating gender of the child. At some point we may be unable to do so, but know these t-shirts are just as important to you, and we will verify with you by sending the final graphic in a email for you to ensure your child's name in spelled correctly.

These t-shirts are sold to fund the Annual Candlelight Vigil, and to provide scholarships to families on our waiting list to attend. Our wait list currently has 57 families, and you can sign up by submitting an email to permission@sbssupportnetwork.com with your name, address, telephone number, relationship to child, child's name, your phone number, and closest international/national airport.

The t-shirts go on sale February 15th, and are made to order. When you place your order you are guaranteed your shirt by the date of the vigil. The last day to order is March 30th. The price of the t-shirts will be the same as previous years, and we will have children's sizes available after our first order of adult t-shirts.

Adult Small-XL $20.00
Adult XXL- $22.00
Adult XXXL - $24.00

These prices *include* shipping.

Please pass along this information to all hands, and we hope we can Light the Sky in April 2011 for all the victims and survivors of Shaken Baby Syndrome, and Child Abuse!

Thank you,
Rachel
rachel@sbssupportnetwork.com

______________________________________________________________

Consent Form

I, (Your Name) give permission to the Shaken Baby Syndrome Support Network to use (Childs Name) name on the t-shirts in support of the 5th Annual Shaken Baby Syndrome Candlelight Vigil to be held in Sarasota Florida Friday April 15th, 2011 at 7pm.

Thank you,
(Your Name)
(Your Address)
(Your Email)
(Your Phone Number)
(Relationship to Child)


Wednesday, December 8, 2010

-Light the Sky- 5th Annual Shaken Baby Syndrome Candlelight Vigil





Happy Holidays from all of us at the Shaken Baby Syndrome Support Network. As a way to bring in the Holidays, and the joy of this time of year, we are announcing all of the information surrounding the 5th Annual Shaken Baby Syndrome Candlelight Vigil. If you would like to give the best gift this Holiday Season, that can continue for many years to come, sponsor a family to attend this event to form the steps for the forever grieving hearts the families bear 365 days a year..

Contact Rachel at rachel@sbssupportnetwork.com to make this happen. We currently have families preparing to sign up for this year. Give the gift that continues to give this Holiday Season for many years to come!



5th Annual
Shaken Baby Syndrome Candlelight Vigil
Sarasota, Florida


You are cordially invited to the 5th Annual Shaken Baby Syndrome Candlelight Vigil in Sarasota Florida, April 15, 2011 7:00p.m. Suncoast Family Life Center, 8000 Hawkins Rd, Sarasota Florida 34241. This year we are gathering the top advocates in Child Abuse and Shaken Baby Syndrome Prevention to speak to the families affected and the general public to bring attention to the severity and increasing cases of Shaken Baby Syndrome in our nation today.

On April 15, 2011, SBS Survivors and Victims families will fly in from across the globe to attend this event.

The mission of the Annual Candlelight Vigil is to bring together families with shared circumstances and raise awareness about Shaken Baby Syndrome. During the vigil, the Candlelight volunteers hope to provide a broad range of information and assistance to families of those affected by Shaken Baby Syndrome. The vigil provides a unique opportunity for families of SBS victims and survivors to come together and share their experience and their knowledge. Information regarding medical treatment and therapy assistance, as well as information on how to handle grief will be available to all who attend. The Candlelight Vigil also works to establish a support system for families of SBS victims and survivors. By linking families together who have shared this traumatic experience, we can help each other to learn, to grow, and to prevent this from happening to other innocent children.

We, the Shaken Baby Syndrome Support Network Inc. are asking you to empower victim and survivor families and sponsor a family waiting to attend or donate items needed to ensure this vigil is a great success. Together we can help families dealing with extreme life changing events to comfort their hearts so they can maintain a life unforeseeable after the tragedy of Shaken Baby Syndrome has come forth in their lives.

Registration and Sponsorship forms are available for you by emailing permission@sbssupportnetwork.com and please visit our website for additional information. http://www.shakenbabysupport.com

We thank you for your support, and please call with any questions or additional information at 877.571.4675 or email rachel@sbssupportnetwork.com
____________________________________________________________________________________

Applying for Scholarship:

The Scholarship for travel sponsorship is for families affected by Shaken Baby Syndrome. You are provided with 1 plane ticket per family. If you were sponsored to attend the vigil the immediate previous year, you would not be eligible for funding for a minimum of 2 years to allow families who continue to wait on our revolving list.
The way the process is expedited is a first come first serve process. We carry over names each year, but you will be advised when you inquire as to what number on the most current list your standing is. You can inquire at any time via the contact us page at http://www.shakenbabysupport.com

Once your in position on the list for a scholarship, you will be contacted directly by Rachel to make arrangements and give you information.

This event is solely funded by the sales of t-shirts to go on sale starting February 1, 2011. You can help us make this event a success and secure your position by the sale of t-shirts to raise awareness all across the Globe.

To sign up for a scholarship to attend the 2011 Vigil in Sarasota Florida, you will need to submit the following information to: permission@sbssupportnetwork.com

Your Full Name:
Mailing Address:
Phone Number:
Email Address:
Child Affected by SBS Full Name:
Victim or Survivor:
Relationship to Child:
Best Time to Contact You:

What is provided? 1 airline ticket is provided per SBS family. You can decide between you who you choose to attend. Once the decision is made, you will need to get in contact with Rachel directly at Rachel@sbssupportnetwork.com for other arrangements.

Events include:
Potluck dinner – 7pm Thursday April 14th, 2011 (6137 Approach Rd, Sarasota FL 34238)
Vigil – 7pm Friday April 15th, 2011
Saturday – Beach BBQ! All Family, Friends, and Supporters Invited!

Local Hotels:
*Please note, no prior arrangements are being made to “block” rooms for this event as the suggested attendance is unknown*
Country Inn and Suites
5730 Gantt Road
Sarasota, FL 34233
(941) 925-0631

Comfort Inn
5778 Clark Road
Sarasota, FL 34238
(941) 921-7750

Hilton Garden Inn
8270 N. Tamiami Trail
Sarasota, FL 34243
(941) 552-1100

Local Airports:
Tampa International Airport
Sarasota International Airport
*Please note, transportation is provided for this event, and to and from the airport, but please contact Rachel prior.

____________________________________________________________________________________


5th Annual Shaken Baby Syndrome Candlelight Vigil
April 15, 2011 7:00p.m.

Location: Suncoast Family Life Center 8000 Hawkins Rd. Sarasota Florida 34241

SPONSORSHIP OPPORTUNITIES

Platinum Sponsor $2,000 5 Surviving Families to attend sponsored by you.Recognition of Platinum SponsorFull page in Event ProgramFront Stage Banner Placement at EventLogo on all t-shirts sold internationally.Logo in all advertisement tv/news/newspaper
Gold Sponsor $1,500 10 rooms for family hospitality sponsored by you.Advertisement on our website and all social sites.Logo on Event Banner at Event.Logo on all t-shirts sold internationally.Logo in all advertisement tv/news/newspaper
Silver Sponsor $1,000 Sponsored by you, transportation to and from airport and event for the families.Logo on Event Banner at Event.Logo on all t-shirts sold internationally.
Bronze Sponsor $500 Round trip flight for an SBS Family Member to attend.Transportation, meals, and t-shirt included.Logo on Event Banner at EventLogo on all t-shirts sold internationally.

Additional Sponsorship Opportunities Available: Entertainment/Beverage Service/Catering/Desserts/Banners/Flyers/Printing Services/T-Shirts/Event Favors
Unable to attend, but I do want to help” Enclosed is a contribution of $_______________


Level of Sponsorship: ________________________________________________________
Name__________________________________ Title_______________________________
Company__________________________________________________________________
Address____________________________________________________________________
Phone Number____________________________________________
Fax Number ______________________________________________
Email Address__________________________________________________

Please indicate how you would like your company to be recognized, and email your logo to rachel@sbssupportnetwork.com

Please make checks payable to:
Shaken Baby Syndrome Support Network
PO Box 21693
Little Rock, Arkansas 72221
Phone: (877) 571 4675 / email: rachel@sbssupportnetwork.com
http://www.shakenbabysupport.com

The Shaken Baby Syndrome Support Network is incorporated in the State of Arkansas and is not currently a 501 c 3 organization. The Network is striving to obtain our non-profit status.

Friday, November 5, 2010

"I Get to Witness Miracles Everyday"

***The information in this story may be graphic and hard to handle, please use caution when reading. Names have been changed to protect the identity of the people involved. However, if you need to contact this family, please leave a comment OR send an email requesting contact to sbsvigil@aol.com ***



My (really long) Story
My beautiful daughter “Angel” was born January 1995. I had never been happier in my life. I loved my new baby and I loved her father with all my heart. One day in March 1995, as I drove to work I thought to myself, ‘I can’t think of one thing that would make me happier than I am right now’.
My daughter had been having bouts of colic so I went home for lunch every day. This day was unlike any other day. She was crying but that was to be expected; she’d been crying for a couple weeks. I’d been in contact with her pediatrician who wouldn’t see her saying I was just a nervous new mother and told me to change her formula, change her feeding position etc. I fed her, gave her a hug and a kiss and asked her father if he was ok or needed me to stay home to give him a break…he said he was fine. He was going to take her for a walk.
When I returned from work that evening her father was busy in the kitchen getting ready to put dinner on the grill. He stopped his work for a couple minutes and followed me into the bedroom to check on the baby. The lights were low, she appeared to be sleeping and it was quiet. It didn’t take me long to realize her father’s behavior was erratic and very unlike himself. He kept telling me to keep an eye on her, that she’d been breathing strangely and followed that up with a revelation I didn’t expect. He told me he had a brother who died who had been breathing like her. I had never heard of any brother but he had me so concerned I didn’t take the time to ask questions. He left the room and I moved closer to see what he was talking about. As I stood over her I realized her eyes weren’t closed and then I saw something brown coming from her mouth. I picked her up and she didn’t respond, she didn’t wake up, she didn’t do anything. I panicked started moving her around to get her to wake up and she started convulsing and screaming this blood curdling high pitch scream and her body bent so far back it seemed an inhuman ability, and then she went limp and silent. I didn’t think, I just reacted. I put her in her car seat, grabbed my keys, ran outside to the bbq and told her father we were going to the hospital NOW! He started freaking out. He threw furniture and seemed like he was out of his mind. I really wasn’t focusing on him I was so scarred for my daughter.
We arrived at the hospital around 7pm and they took her in immediately but I couldn’t give them the information they needed to help her because I didn’t know what was wrong. Her father’s behavior escalated. He grew more and more agitated and more and more dangerous. He started threatening doctors and staff whenever “Angel” would cry while they were poking and prodding looking for an answer. As the night wore on I got to a place where I didn’t recognize him at all. He wasn’t the gentle loving man I loved. He was angry and aggressive and I was afraid. The hospital staff was so concerned they posted a security guard outside of our room. They came in around midnight and said they were going to do a cat scan because they ran out of tests they could do. I went it to the room and watched as they were doing the test and while I’m not familiar with what I was looking at I knew what I was looking at was bad…really bad.
Then the tech turned to me and asked…”what happened to this baby?!” Lights came on, bells went off…my entire night flashed before my eyes and I knew what was wrong with my baby and I knew what was wrong with her father. I went on autopilot. I couldn’t lose it, I couldn’t break down, I couldn’t think straight. The doctors came in and while they were telling me the only way this injury could have happened was by violent shaking I could barely hear them. I felt myself falling and falling and it felt like it would never end. I carried my daughter back to our room where her father was waiting and pacing. He asked me what they said while pacing like a caged animal.
I was afraid. I sat in the chair with “Angel” in my lap and told him they said she’d been violently shaken. He said, “You think I did this!”, picked up the hospital bed and threw it on me. I ducked to shield my baby and it landed across my back. The security guard immediately removed him from the building. I was fine and “Angel” was unhurt in his attack. Someone came in and told me he’d been removed and wouldn’t be allowed back inside and they had called the police. I was somewhat relieved but at the same time everything was a blur. I didn’t know what was happening or what was going to happen. A parade of doctors and nurses came into room.
They proceeded to tell me they didn’t have the facilities needed to care for my daughter and she was going to be transferred to another hospital and that I could go with her and they quickly started preparing us for the ambulance ride. As they were strapping me onto the gurney and placing my daughter into my lap the police arrived and proceeded to question me. They questioned me as if they believed I was the person who did this and kept telling me I needed to tell them the truth, that I did it. I kept telling them I wasn’t home and I didn’t know what happened until the doctors did the cat scan. They said they were going outside to question her father and I needed to rethink my statement and they would be back. They were gone I don’t know how long but when they came back they took my daughter from my arms, removed me from the gurney and told me she was no longer mine and if I ever wanted to see her again I would do exactly what they said…go home with her father and wait for children’s services to contact us. I begged, I pled, a cried, and begged again. I told them I couldn’t go with him, that he’d already attacked me and I was afraid. I followed them and kept begging but they said I wasn’t their concern and then they left.
I ran to my car. I tried to get out of there without her father seeing me but he saw me and he got into the car before I could lock the doors. I didn’t know what to do so I drove and I avoided his questions. A couple blocks from home he flipped out saying I believed he did this and that I was going to abandon him and then got out of the car. I went home to our apartment building, ran upstairs and grabbed clothes and tried to get out before he got there but I didn’t make it. He saw me going down the back stairs and chased me. At first I was worried about waking the neighbors and making a scene. When I realized he wasn’t going to allow me to leave and that he had every intention of hurting me to prevent me from leaving I agreed to go back upstairs thinking I could get to the phone. I ran for the phone and dialed 911 but he took it from me before it even rang and broke it into a thousand pieces by beating it against his chest. He then grabbed me by the throat, lifted me off the couch and hung me against the wall. I tried to fight but I couldn’t reach anything so I grabbed him where it hurts and twisted as hard as I could. He didn’t flinch…not even a little. He just got angrier. He let me go but then started punch holes in the wall around my head. I flipped. I didn’t care about waking the neighbors. I screamed and pounded on the walls and yelled for help. It was 1am and I figured help would come. It didn’t. He couldn’t have me making so much noise. He threw me down on the floor, grabbed my throat and wouldn’t let go. I believed I was dead. I don’t know how much time passed but I woke up and started screaming again. He grabbed me and drug me into the bedroom and pushed me into the closet. I screamed and pounded as loud as I could for as long as I could until I had no voice left and no energy. He kept coming in and punching holes in the walls by my head telling me to be quiet and trying to get me to tell him I didn’t believe he could do this. The rest of the night is a blur. I don’t remember much except when it got quiet and he stopped coming. I snuck out of the closet and found he was sleeping on the couch. I grabbed my keys, opened to door as quietly as I could and ran. I was a mess and I didn’t know what to do so I went back to the hospital.
They saw me walk in and saw their faces looking at me and heard them saying, “oh my god”. They checked me out and outside of all the cuts and bruises I was ok. They said they had to call the police which they did. Imagine my surprise when the same 2 officers who took my daughter from my arms and told me she was no longer my child showed up. They laughed and joked about how I got what I had coming to me all the while photographing my injuries. They told me I got what I deserved and left. They went to my apartment and arrested my daughter father but I didn’t feel safe so I couldn’t go back there.
I couldn’t go see my daughter. I couldn’t call and find out how she was. All I could do was wait. I waited for 2 days with no information. After children’s services came to interview me I was told I would only be allowed supervised visitation with my daughter. I didn’t understand but I didn’t care. I just needed to see her. I went to the hospital and they put me in a room with several doctors and a social worker who proceeded to tell me they needed to explain what I was about to see. The doctors explained the extent of her injuries and that she was in a coma and they didn’t know if she would survive or what her quality of life would be if she survived. At the end of the interview the social worker turned to me and said…”so you’ve done this before?” I was dumbfounded and confused by her question and very angry that she would even ask such a thing. She proceeded to tell me that the officers who accompanied her when she was transferred told them I had done this and I had done this to my other child. I’m not really sure what I said or how I reacted. I was so angry and appalled I just talked and she listened. She said she believed me but she had to go by the court order and only allow me to see my daughter while being supervised. I didn’t care I just needed to see her.
I walked into picu and there was my baby so tiny and helpless with so many tubes and wires; so many that there was hardly a place to be able to touch her. I couldn’t pick her up or hold her. I could only stand by her bed and look at her and stroke her little arm and talk to her. I would talk to her for hours. After a couple weeks I was able to hold her but with all the tubes and wires it wasn’t easy. After another week they decided to allow her to wake from her induced coma. They didn’t know what would happen, if she would be able to breathe on her own and if she could if she would be able to eat. They prepared me for the worst. She woke up, she breathed on her own, she opened her eyes, she cried. They brought me a bottle and she ate. I was so relieved. They gave her medication for her pain and she went to sleep. I left the hospital to go home and shower and upon my return she was back on all the machines and back in a coma. They said her vitals were crashing and they had to do what they had to do. A few days later they removed the machines and woke her again. Again she did wonderfully and this time she didn’t crash. She stayed in the hospital another week. Upon her release they gave me her prognosis. She would never walk or talk; she was blind and would be in a chronic vegetative state for the rest of her life. And then, they sent me on my way. With the help of the social worker at the hospital my daughter was released into my care although she was still not mine according to the courts. I spent the next year in court to clear my name and get full custody back. That’s another long story but ultimately I have full custody back and her father got 10 years total for what he did to her and me. He was released after 8 ½ years. During his incarceration he continued to violate court orders not to contact me sending letters expressing how he believed we would be a family again. I reported it but they said there was no imminent danger and refused to do anything about it. When I heard he was going to be released I moved out of state and changed my name. So many people said I was being melodramatic and he wasn’t going to come looking for us after so much time. The day he was released my phone started ringing. Friends started calling telling me he’d been to their homes looking for me. I called his parole officer but I am unsure what happened from there. I didn’t want him to find out where I was. “Angel” is now 15 and I am using an alias for my daughter still because we live in fear he will one day find us. Just writing this I know can be dangerous but after living in fear for so long, a few months ago I decided he wasn’t going to take my whole life. I believe our story could help someone and it needed to be told.
As I said, “Angel” is now 15. She is not blind, she can say, “good girl”, “I go school”, “I got you” and “I love you” . She learned to crawl when she was 7 and now walks on her knees. Although she’s essentially nonverbal she’s a very social girl and as far as I’m concerned she’s multilingual. She understands English and Spanish and is quite adept at teaching anyone who spends time with her her own language. She’s very smart and she’s still learning and progressing. I think she gets a kick out of proving the medical community wrong. All in all she is no vegetable. She loves music, it’s her life. She also loves swimming and walking in her walker and riding in the car. We don’t really focus on what she can’t do because it’s so much more satisfying to focus on what she can do. I admit for years I didn’t understand how something like this could happen. It was difficult having my entire life ripped out from under me in the blink of an eye. At first I was numb and overwhelmed. Then came the self pity and guilt over feeling self pity. Then came the anger. All the while I had this beautiful brilliant girl doing everything in her power to tell me she’s an angel incarnate. She has a gift that not many people have. She has the ability to get everyone she meets to fall in love with her. Being unable to carry a conversation I have to say she amazes me how easy she makes it look. So now that the numbness, anger and self pity have passed I know I’m the luckiest mom. I get to witness miracles every single day and I’m so happy and proud to be the mom of an SBS survivor.