What is Shaken Baby Syndrome?
Each year in the United States alone, medical treatment is sought for an estimated 1,400-1,600 babies who have been shaken. Don’t let your child become just another statistic! Tell everyone who cares for your child “Never shake a baby!”
Tuesday, August 31, 2010
Brand NEW Shaken Baby Syndrome Awareness T-Shirts!
These t-shirts come in Adult Sizes. The pictures are of the front and back proofs we have submitted for printing. When ordering t-shirts please note, these are ordered in quantities of 25-50. Please allow atleast 14 business days from the time you order for printing, and an additional 5 business days for shipment. These are shipped First Class by USPS, and if ordering from overseas, please contact Rachel: rachel@sbssupportnetwork.com for information on pricing for shipment overseas.
Don't have a paypal account?
Thats OK! You can continue through your purchase and purchase using a credit/debit card just click pay with paypal then click continue on the next screen on the left side to pay without a paypal account
Price Break : There will be a price break for t-shirts purchased in quantities of 25 or more. contact Rachel as well for price break information.
The children names displayed on the t-shirts for the fall season are as follows.
These names were submitted with your permission to be added, and are not chosen, as names are taken until the space is filled.
Olvia Kangas
Jacob Whittemore
Gavin Scott Bailess
MeKenna Sharee Brown
Cynthia Gibbs
Tyler Wade Gruhler
Zachariah Goodwin
Emily Rose
Michael Blair
Scott Craig III
Juliana Thaxton
Evalee Jonsen
Duncan Nathaniel Youngblood
Loyce Darlene-Marie Decker
Bryan Parker
Kyle Mitchell
Aaron Cherry
D'Mitri Young
Alexis Vazquez
Joshual Andrew "Tre" Arnold
Alex "Braveheart" Batista
Thomas Chase Sullivan
Camryn Jakeb Wilson
Riley Grace Gilbert
Bradyn Springton
Kassica Ashley Harp
Trevor Anderson-Drews
Nicholos Richard Simpson
Jasmine Christine Coombs
James Michael Nolan Hutchinson
Zephyrus Atiyyah Llud McCartney
Anthony Ceiling
Nicolette Jo Klinker
Preston Garret
Dylan Taylor Haynes
Seraphina Bernardi
Lorelei Leigh Castello
Lily Grace Spataro
Miranda Joy Raymond
Meagen Hope Arnold
Joesp "Billy" Williams
Joshua C. Stewart-True
Hunter Burry
Sophia Salamone
Dustin Crockett
Colby Thompson
Bryce McCormick
Kaleb Schwade
Brynden Tyler Gibson
Dominic Jason DeWitt
Daniella Westlin
Austin Thelen
Austin Childress
Cheyanne Addison Huffines
Madilyne Christine Wentz
Isabella Tatianna Servin
Tyler Edward Arnold
Alan Brady Hines
Blake Murphy
Eli Hegwood
As always, you can also send in your order by Money Order only to:
Shaken Baby Syndrome Support Network
P.O. Box 21693
Little Rock, AR 72221
All sales from the t-shirts will go towards our $15,000 goal for to fund 100 families at the 2011 5th Annual Shaken Baby Syndrome Candlelight Vigil in Florida April 2011. Please be sure to donate today and help us meet our goal to help those lost in destruction due to Shaken Baby Syndrome.
If you have any questions or concerns you can always email us at contactus@sbssupportnetwork.com or call us today for support or concerns at 501.246.2917
Thank you to all the families whom gave permission, and to all of our supporters for their continued support of our efforts!
CLICK HERE TO PURCHASE
Tuesday, August 17, 2010
~Miss Lillyanna Renee~
Lillyanna Renee Stevens was born on April 21st 2006! She was a healthy baby with no complications! She lit up my world for the 7 short weeks that I had her before the abuse took place. I being the sole provider for our family had to go back to work 5 weeks after my little angel was born and I left her in the care of her father while I went to work! Never would I have ever suspected he would hurt our little baby girl.When Lillyanna was 7 weeks old we learned that her father had been abusing her. I took her in for an exam because of a large bruise on the left side of her face. My daughter was hospitalized for a few days and we learned that she had two skull fractures and a neck fracture and had suffered from hematomas on the left front of her brain and also on the back by the base of her neck! My daughter was then placed into state foster care and had to remain there for 3 years. Her father got sent to prison but only for 3 years and now Lillyanna has gotten to come home to me. She has seizures and severe anxiety due to abuse and sleep apnia due to abuse the doctors say! We are constantly going back and forth to Portland for testing and doctors apointments. And have been to the hospital a few times but she is such a trooper. She is a beautiful little girl that inspires me everyday because I can look at her and know that whatever problem I am having hers are always worse and she tackles them with a smile. You are a trooper baby girl and my miracle baby!!! I love you with all my heart!
-Written by her mother Katrina
Thursday, August 12, 2010
5th Annual Shaken Baby Syndrome Candlelight Vigil
As you can see above we have received the MUCH awaited information regarding the partnering with Disney World for the 5th Annual Shaken Baby Syndrome Candlelight Vigil. Very exciting news for us, as originally thought it would be at Universal Studios but are truly working towards an experience for our victim families and our families with survivors of Shaken Baby Syndrome.
Why the vigil?
The mission of the Annual Candlelight Vigil is to bring together families with shared circumstances and raise awareness about Shaken Baby Syndrome. During the vigil, the Candlelight volunteers hope to provide a broad range of information and assistance to families of those affected by Shaken Baby Syndrome. The vigil provides a unique opportunity for families of SBS victims and survivors to come together and share their experience and their knowledge. Information regarding medical treatment and therapy assistance, as well as information on how to handle grief will be available to all who attend. The Candlelight Vigil also works to establish a support system for families of SBS victims and survivors. By linking families together who have shared this traumatic experience, we can help each other to learn, to grow, and to prevent this from happening to other innocent children.
How can you help?
We are reaching out to all of our families to help us make the 5th year the best year! Some of our guest speakers include: Darryl Gibbs (father to Cynthia Gibbs), Scott Juceam (father to Hannah Rose Juceam) and many MANY more! To celebrate the 5th year, we have chosen such an amazing location to bring the families together to celebrate the the lives of our survivors, and to honor our victims.
On our website (Click Here) you will find an array of ways to contribute. You can purchase merchandise, some of which can be personalized with your child's name on it, contribute using the chip in widget on our donate page, or get in contact with our Event Coordinator "Mama Kim" at kim@sbssupportnetwork.com to see how you can host a fundraiser to assist. This is definitley something we can not make happen alone. Our goal is to provide funding for 100 families to attend this year.
What happens if our funds raised do not meet the cost to host it at Disney?
There will be another venue chosen. Truly we hope you will work with us to meet our goals and make dreams come true.
As always I would like to thank all of our families and supporters for coming to us for support in the most delicate time of their lives, and for the supporters who stand by us and help us raise awareness that this 100% preventable tragedy does not discriminate, and YOU have the POWER to change the current statistics.
Please find it in your heart to donate. No donation is too small. You can even donate just $1 and vote for a child to be on our race car and have a race sponsored in their name.
All donations are accepted via paypal, using the donation widget below. Don't have a paypal account, but have a credit or debit card? Use the Chip In Widget on our donate page, and once you click "Chip In" on the left side click continue using with a credit or debit card instead of signing into paypal. Even better news! Don't like to put your information in online? Send in your donation today made out to: Shaken Baby Syndrome Support Network to PO BOX 21693 Little Rock AR 72221.
Below you will find our sponsorship packages. Sponsorship packages (**Excluding the Bronze Package) include your business or childs name on ALL marketing materials, including but not limited to banners, tshirts, brochures, website, and all of our educational materials.
Thank you again for your outpouring support and love for the organization and the families associated. Together we are ALL making a BIG difference.
Thank you,
Rachel
rachel@sbssupportnetwork.com
Find us on:
OUR WEBSITE
Wednesday, August 11, 2010
Little Miss Evalee Diane
My husband deployed with the Air Force to Afghanistan October 1st of 2009. I was a full time Occupational Therapy student and due with our 3rd child in November. I gave birth to Evalee Diane on November 16, 2009. The base my husband was at was not adequate enough for internet so he stood by me during the birth on my cell phone and saw pictures of her for the first time a month later when the mail finally got to his base. We had her on the wait list to get into the military daycare and a week before I had to be back to school they let me know that they no longer had a spot for her. I had to find a different daycare for her temporarily until we could get her in on base where our 2 year old and 4 year old went to school. I found another military wife who lived 2 minutes from our house and had a daycare in her home. She seemed great, and had worked in the daycare business for a while. She even had a baby herself. Evalee was 2 months old when she started there. There were no indications or warning signs that this was not a good place for my child. Then exactly one month to the day after she started daycare in this woman's home I received a number of phone calls. Phone calls from her, her neighbor, and the police that I needed to get to the Emergency Room as soon as possible. That my baby, 3 months old, had been dropped down the stairs and stopped breathing. My world fell apart. I rushed to the hospital and I was not allowed to see my baby for what seemed like eternity. It was an hour or so. She had been taken for CAT scans and had to be intubated. The first time I saw her she was in a medically induced coma, on a ventilator, and had tubes everywhere. Also as soon as I arrived at the hospital I was greeted by a detective. I couldn't call my husband to tell him the horrible news because he was out fighting for our freedom. I was devastated. My worst fear had come true. How do you tell your husband that his daughter he hasn't even met yet is in a coma? It wasn't until the next day when the opthamologist came in and told us that it was shaken baby syndrome and that her brain injury was an intentional act that I just fell apart. I was also informed that Evalee had stopped breathing for a significant amount of time and the babysitter did not perform CPR. How could I have put my child in someone's care that would hurt her?! At this point the red cross was working diligently to expedite my husband back from war to see his daughter for the first time. During this time she had to be transported to Children's Hospital because she would not wake up from the coma. She started having seizures and had to be heavily medicated to stop them. The babysitter was finally arrested for felony child abuse and first degree assault 2 days later. She still denies shaking her and is sticking to her story of falling down the stairs while holding her. My husband finally arrived 4 days after she was shaken. He had no idea what had happened and I had to pick him up from the airport and break the news to him that she had been shaken and was in the PICU with a traumatic brain injury. That was horrible. So my husband went from living in the desert in a tent to living in a hospital for the next 6 weeks. After a couple weeks she was transferred to a Rehabilitation hospital for therapy and she finally started eating on her own and making progress toward recovery. It has now been 4 months since she was shaken and she is doing great. She still goes to therapy twice a week and we are so grateful to have her alive! We still have a long road ahead of us and not knowing the extent of her injuries. We also have a long legal battle ahead of us as well. Please keep this story in mind and NEVER EVER SHAKE A BABY!
Tuesday, August 3, 2010
One Survivors Request Sent to Dr. Phil~ Blog from his Mother
Hi Rachel:
I'm so thrilled that 10 years after my baby was shaken, to once again find
the strength and courage to continue my outreach and fight for justice, and
happy to have found your site!
I have written to Dr. Phil - and I HOPE and PRAY I get the chance to be on
his show and go public to millions. I'd like to share with you my letter,
and perhaps I share my story on your site. It's a long letter, but....as
we all know, it's a LONG journey.
I have copied this email to my personal email address, if you don't mind
replying to all, so I can be sure to get your response both at work on at
home.
(See attached file: Dear Dr Phil v9.doc)
(See attached file: Brain Surgery.jpg) (See attached file: Agent Headshot
Sheet.pdf)
God Bless YOU and the awesome work you do!!!!
~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~
CATHERINE PAOUR
Dear Dr. Phil,
My son and I need your help. I’ve thought about writing you so many times. I have never missed a show since day one, and I have learned so much about dealing with my life through your teachings. I’ve watched shows and thought, “God, I should be on that show” such as wrongfully accused, how the system failed, DCFS, PTSD, trust issues, schools systems, the child advocate -- the list goes on and on. I might add that I just adore Robin. I read her book Inside My Heart and it just strengthened my 10-year desire to share my story and further define my purpose as Trevor’s mother and his best advocate.
My son Trevor is turning 11 years old the end of the month. He is a very charismatic, vivacious, fun-loving, spirited “tween”. He’s quite social, he considers himself “half and half popular” at school, good looking and athletic. He leads a life full of abundance: family, friends, prayer, vacations, home life, “things”, pets, church, outings, talent -- you name it. He excels in so many things. He has a real gift for drawing and a passion for acting (hoping to be on TV and has a talent manager and agent). He’s been in cub scouts, YMCA, is learning Taekwondo, loves pop music from young stars and I afford him many opportunities. Trevor is a funny, happy-go-lucky joy in the lives of many that he has touched. He’s compassionate and a real sweetheart. Here’s the problem:
Trevor was a victim of SHAKEN BABY SYNDROME at the age of 4 months. The past few years, as he continues to develop and mature, issues continue to emerge. At this age, he is now able articulate how he feels as well as how he feels others treat him. He has suffered from severe chronic cluster migraines, abdominal cluster migraines (I had never heard of those), and jaw, mouth and neck pain. He’s had muscle spasms, tingling and numbness. He suffers from depression, anxiety, stress, fear, anger, rage, mood swings and obesity. He has had insomnia and racing thoughts. He is hyper-sensitive to people or things that annoy him and can become very emotional. One little thing can cause him to immediately sink real low. His feelings get hurt very easily. He sometimes has low self-esteem, other times has a great opinion of himself. He gets very depressed when he’s physically or emotionally hurting, yet sometimes can tough it out in good spirits. He has in the past, talked to a doctor about hurting himself. He’s complained of “out of body” experiences since 2nd grade. He’s expressed feeling like someone else sometimes controls his mind. He complained for several years about a feeling of a blackout – when he momentarily doesn’t know what happened. He would overheat and feel weak, or be freezing and trembling. He has vision issues from the retinal hemorrhaging. He has huge trust issues with people in authority (I don’t blame him). He’s figured out that someone almost killed him, and he doesn’t trust anyone but me (which is hard on me). It hurts to sometimes see him be disrespectful and defiant to those he should be respecting. He’s questioned his self worth. He’s not violent, and is always remorseful when his behavior crosses a line. He cries and says he doesn’t want to be that way, but says he can’t help it and doesn’t know why. Each step along his journey, he learns more about his injuries and what happened, and the more it pisses him off and he wants to hurt the person who hurt him. Or anyone else who pisses him off. To add more to his “slate of who he is”, he’s had to deal with numerous life changes, but I’ve done a fabulous job with him, and I’m dang proud of it. I know him better than the back of my hand. He is high maintenance, but the one thing that holds him together and keeps him going is my love for him and my perseverance to never ever give up on him. And I will protect and defend him till the day I die. And he knows that. The good news is, he’s maturing, and doing a lot better emotionally this past year, thank God.
I have been very proactive and persistent in seeking answers, help and relief for Trevor especially over the last few years as he’s been in elementary school. I have consulted with an army of doctors, who in my opinion only scratch the surface without looking outside the box, medicate him and send him on his way. He missed 30 days of school last year with debilitating symptoms, and the school put us all through hell. I’m strong for him, yet exhausted and desperate for some relief. Sometimes, all I want is to justify his being alive and hope people will be more compassionate to his sensitivities. My perception is that people seem to not believe that he is in pain, whether emotionally or physically, and he and I have been accused of lying. That’s eating away at both of us.
My main reason for writing is for my son. I’m desperate to get him the attention he needs to really connect the dots and get some answers before he enters his teen years. My hope is that Dr. Phil can make me feel assured that I’m doing the right thing in the best interest of my son, or tell me if I’m not. I pray every day for some revelation or new resources to help Trevor. I need to understand more about his brain, and he’s ready to learn more too. Are his injuries at 4 months affecting his life now, or is everything Trevor experiences a fabricated story or psychosomatic (as some people think)? I would love to meet Dr. Lawless and the Neuroplasticity Center. And if I ever make it to Texas, to pay a visit to the Shaken Baby Alliance, who was there for me during those first few weeks of him being shaken when our lives took a traumatic and dramatic turn for the worse.
My second reason in asking for your help is for me. I suffer everyday with PTSD. I was falsely accused for inflicting this abuse on Trevor, and the system FAILED me. Details on that is further down in this letter. It’s hard for me to deal with school harassment and bureaucracy, and even still living in my same house just blocks from the daycare provider’s home. I’m triggered just seeing an ambulance during rush hour traffic, or a 4-month-old baby. Although I am usually an open book, I’ve been stuffing my feelings for 10 years now, and I can’t do it anymore. People commend me for being strong, happy and a great mom to Trevor. But someone touches a sensitive subject and I’m defensive, and weakened to tears. I’m sick of always feeling like I have to justify Trevor’s or my actions. I had to overcome the ultimate unthinkable blow to my motherhood, and I’m not going to let policy, bureaucracy or insensitive people take me down again. I’m always seeking ways to continue to lead a full and productive life, and be the best influence on my son as I can possibly be. I continually face walls of adversity, both his and mine, and perceived judgment from others on how I handle things with Trevor. But the bottom line is this: I don’t know what really happened to Trevor on December 2, 1999 when he was abused, since the daycare and her family didn’t have to say a word in court. I don’t know what ever happened to the daycare provider, if anything, and I honestly don’t even know that she’s the one who did it -- it could have been her husband or anyone else in that home. All I do know, is it happened while in her care; and Community Care Licensing did nothing. I know that the State put me through pure hell, and what’s going on with Trevor today is REAL. I’m seriously troubled with the thought that the daycare provider who did this to Trevor is still out there, free and clear. They were able to walk away and move on with their lives with no questions asked. We recently found the daycare provider on Facebook with a Masters in Education, and her husband a Sacramento Police Officer. Undoubtedly, both are still working with children. WHAT is wrong with our system??????
Hopefully, continuing to share my story we can uncover some answers to this mystery and save the life of an innocent child in doing so.
I know this is a long letter. I can’t help it. You can stop here, but I hope you’ll have time to read on to see how this story began.
=============================================================
Go back 10 years. I returned to work after staying home with Trevor for 3 months. I worked for 19 years in Public Relations/Foundation for a local medical center. I dropped Trevor off at the licensed daycare provider’s home at 7:30 am, and spent the day working a holiday hospital fundraiser, which included escorting children through a festival of trees and visit with Santa Claus (who happened to be the daycare provider’s grandfather). When I got off work, I went to go pick Trevor up around 4:45 pm. As I approached the daycare provider’s home, I noticed an ambulance out front, which only caused some concern, since the daycare provider’s husband was an ambulance driver. As I quickly approached the porch, I heard, “There she is now.” I arrived to find my son unconscious. The paramedics put him on my lap, onto the gurney and flew out the door back to the hospital where I work after signing a release in case Trevor were to pass before arriving at the hospital. It was the worst ride of my life, and I had no idea at that time it would be a life sentence from that day forward. With a life-threatening situation on the ER’s hands, and thanks to a quick CT scan identifying the hemorrhaging, they quickly transported him to a children’s hospital, better equipped to handle pediatric trauma. My hospital co-workers comforted me while I couldn’t help but fear the worst.
About 4 hours later, it was determined that Trevor suffered severe brain hemorrhaging and retinal hemorrhaging. He had seizures and gaze paralysis. His outlook seemed grim. Doctors were aloof. His father and I had no clue what was wrong with Trevor or what was going on. He was in PICU for 10 days, while eventually we learned that his diagnosis was Shaken Baby Syndrome, or “non accidental trauma”. Or in terms that most people understand: CHILD ABUSE.
It makes sense that it happened while in her care. I dropped Trevor off around 7:30 am, and picked him up at 4:45. BUT, 4 days later, Children Services quickly detained him, and charged me and my husband with child abuse. We could no longer see him in the hospital, didn’t know if he would survive, and couldn’t even be with him when our pastor came to pray for him. While we wanted to do everything we could to get to the truth and find out what happened, we were advised to have no contact with the daycare provider, and our focus had to be on defending ourselves at this point, and I’m talking immediately. After 10 days, he was released from the hospital, and I worked my tail off to get my parents guardianship over my baby, rather than going to a foster home. We went 4 months without my child in my home, with only supervised visitations. Meanwhile, the State of California slammed us with count after count, up to and including permanent removal of parental rights – twice! As court proceedings continued on for 4 months, we also had to try to keep our jobs and highly visible positions in the community, without being a PR risk. We had tons of support, but some people did have strange reactions, which I guess is normal for someone accused of such a hideous crime. We struggled to keep our marriage together while Trevor lived with my parents, come up with finances for extensive legal and medical bills, and endure Trevor 1st Christmas – with out him. As the New Year 2000 came, he still wasn’t home, and they put him on MediCal, and wouldn’t even let me be with him for his brain surgery.
The agony continued as DCS demanded we take parenting classes, an anger management program, and presented us with some despicable “offer”, or in our case, what seemed like blackmail. They even conducted an adoption assessment on him - ready to throw him right into the system. This was right on the heels of President Clinton signing a bill to fund quicker adoptions. Their attempt to rip my baby right out of our loving arms was beyond anyone’s wildest imagination. No one could understand. Not even the Doctors, nursing staff, hospital social worker, therapists, and in some cases, DCFS own case workers. The whole situation spiraled so far out of control and all we were ever told by DCFS was “were just following protocol”. We went through countless case workers, and not one single one believed we had anything to do with injuring Trevor. This all came out in the trial as well.
Everyone would ask: “What happened to HER” – the daycare provider? Well, she took the 5th amendment in the trial against us. And then she and her family were long gone. Up and moved. They rented their house in our neighborhood – and now they were gone.
We somehow managed, through the grace of God and a ton of legal fees and medical bills, to prevail, and we got our baby back. The judge in our trial heard not one shred of evidence that would lead anyone to believe we were responsible for his injuries. We never even had to present our side, we only went on the stand for the prosecution. After the state presented their side, the case was dismissed. The judge declared the trial over after 4 months of hearing about the daycare provider’s deception, and after the medical testimony of the treating Neurologist, and my pediatrician who testified that the “mother walks on water”. Anyone in their right mind would look at and say “we have to go after that woman; we have to know what happened to this baby. And we have to make sure she is never around anyone else’s children again.” Nope. Not one darn thing was done to her that I know of anyway. But our focus had to be on our family, and reestablishing a bond with Trevor, who missed out on critical attachment to his mother for those first 4 months.
Thankfully, Trevor wasn’t blind, as we were told he might be, but later learned he was considered legally blind his right eye. He had no broken bones, and no one really paid much attention to his neck. His seizures were managed, and the shunt in his brain help resolved the internal bleeding. He had no visible evidence of his injuries except a shaved head from his brain surgery and residual effects of his brain damage. He was living with my parents, and progressing well. Unlike my marriage!
A year or so later, we tried to file a civil suit against her. Couldn’t do it. We reached out to several legislators, and finally authored a law, Senate Bill 819, (2001). This law was not in place for us, so we were basically SOL in taking any action against her.
My husband and I were invited to speak at the International Child Abuse Conference – not about our baby, or shaken baby, but on the topic of “WHAT WENT WRONG”.
(I have it on video tape.) My attorney then became advocates for finding out what happens to us now that all charges have been completely dropped, but we still appear on the National Child Abuse Index. As far as I know, I’m still on it today. I began sharing my story with local Kiwanis, Rotary, Jaycees, and everyone that would listen. This was a real-life story that took place in our neighborhood, not something you only see in a Lifetime TV Movie (although I’d like to write one!). My husband was a little more private so I tried to move on with our lives. And my child was my number one priority.
Another year later, Trevor’s father, with no notice or warning, left the marriage and our home. I have been raising Trevor alone ever since. I made certain our divorce was amicable, (even though I didn’t want to, the way he left) and Trevor continued to see his father. Don’t get me wrong, his father had NOTHING to do with this. The evidence presented in our trial so clearly points to the daycare provider.
So here we are today. Trevor suffers a little more and more as he continues to develop and his body grows. I sense that the countless number of medical professionals that Trevor has seen in recent years just can’t see beyond their specialty, or make sense of what’s really going on with Trevor. We go from one to the next with no coordinated effort at all, except my endless quest for someone to look at the whole person.
Call it mother’s instinct. I know my son so well. There is something going on with him, outside of sometimes lacking coping skills, being raised in a single-parent home, having severe headaches, or being labeled with a “mood disorder”. There have also been accusations, especially in the past few years, of him making up his illnesses to manipulate me, me babying him, and him getting away not going to school. I have worked hard and I think have bridged all those gaps, and continue to have an army of support. I have a 504 plan in place for school, I have an attorney and personal advisor to help me deal with the school and their insane systems and approach to dealing with Trevor’s ails and medical absences. I’ve been in therapy to help me deal with the PTSD. I have family support, however some don’t live it like me and my parents do. I had to eventually leave the hospital after 19 years, which ended in the oddest of circumstances, but I currently have an awesome job, with tremendous support, and I am working to pursue my goal of sooner rather than later moving out of my neighborhood and starting to make new refreshing memories for me and my son, closer to my parents, his school and friends. While I feel ever so blessed to own my home, it’s a house with some pretty awful memories, some “defining moments” and it’s too close to “her” house. Both Trevor and I feel the need to move on.
I was pretty organized during all these years – and am the document queen. I have every letter, report, film, transcript, record of conversations, above and beyond, which proved in my case to serve me well. Your producers would love this one. I hope that someday, I can get the chance to tell my story to all the moms out there: what’s possible in your own backyard, how the system failed me and my child. And once again stand up for the rights of a child, who now is old enough to have a voice. I sure wish he did back then. And maybe we can save another child from the perpetrator. And who knows, maybe Trevor’s dream to be on TV will come true after all!
Regards, and from deep “inside my heart”,
Catherine
I'm so thrilled that 10 years after my baby was shaken, to once again find
the strength and courage to continue my outreach and fight for justice, and
happy to have found your site!
I have written to Dr. Phil - and I HOPE and PRAY I get the chance to be on
his show and go public to millions. I'd like to share with you my letter,
and perhaps I share my story on your site. It's a long letter, but....as
we all know, it's a LONG journey.
I have copied this email to my personal email address, if you don't mind
replying to all, so I can be sure to get your response both at work on at
home.
(See attached file: Dear Dr Phil v9.doc)
(See attached file: Brain Surgery.jpg) (See attached file: Agent Headshot
Sheet.pdf)
God Bless YOU and the awesome work you do!!!!
~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~
CATHERINE PAOUR
Dear Dr. Phil,
My son and I need your help. I’ve thought about writing you so many times. I have never missed a show since day one, and I have learned so much about dealing with my life through your teachings. I’ve watched shows and thought, “God, I should be on that show” such as wrongfully accused, how the system failed, DCFS, PTSD, trust issues, schools systems, the child advocate -- the list goes on and on. I might add that I just adore Robin. I read her book Inside My Heart and it just strengthened my 10-year desire to share my story and further define my purpose as Trevor’s mother and his best advocate.
My son Trevor is turning 11 years old the end of the month. He is a very charismatic, vivacious, fun-loving, spirited “tween”. He’s quite social, he considers himself “half and half popular” at school, good looking and athletic. He leads a life full of abundance: family, friends, prayer, vacations, home life, “things”, pets, church, outings, talent -- you name it. He excels in so many things. He has a real gift for drawing and a passion for acting (hoping to be on TV and has a talent manager and agent). He’s been in cub scouts, YMCA, is learning Taekwondo, loves pop music from young stars and I afford him many opportunities. Trevor is a funny, happy-go-lucky joy in the lives of many that he has touched. He’s compassionate and a real sweetheart. Here’s the problem:
Trevor was a victim of SHAKEN BABY SYNDROME at the age of 4 months. The past few years, as he continues to develop and mature, issues continue to emerge. At this age, he is now able articulate how he feels as well as how he feels others treat him. He has suffered from severe chronic cluster migraines, abdominal cluster migraines (I had never heard of those), and jaw, mouth and neck pain. He’s had muscle spasms, tingling and numbness. He suffers from depression, anxiety, stress, fear, anger, rage, mood swings and obesity. He has had insomnia and racing thoughts. He is hyper-sensitive to people or things that annoy him and can become very emotional. One little thing can cause him to immediately sink real low. His feelings get hurt very easily. He sometimes has low self-esteem, other times has a great opinion of himself. He gets very depressed when he’s physically or emotionally hurting, yet sometimes can tough it out in good spirits. He has in the past, talked to a doctor about hurting himself. He’s complained of “out of body” experiences since 2nd grade. He’s expressed feeling like someone else sometimes controls his mind. He complained for several years about a feeling of a blackout – when he momentarily doesn’t know what happened. He would overheat and feel weak, or be freezing and trembling. He has vision issues from the retinal hemorrhaging. He has huge trust issues with people in authority (I don’t blame him). He’s figured out that someone almost killed him, and he doesn’t trust anyone but me (which is hard on me). It hurts to sometimes see him be disrespectful and defiant to those he should be respecting. He’s questioned his self worth. He’s not violent, and is always remorseful when his behavior crosses a line. He cries and says he doesn’t want to be that way, but says he can’t help it and doesn’t know why. Each step along his journey, he learns more about his injuries and what happened, and the more it pisses him off and he wants to hurt the person who hurt him. Or anyone else who pisses him off. To add more to his “slate of who he is”, he’s had to deal with numerous life changes, but I’ve done a fabulous job with him, and I’m dang proud of it. I know him better than the back of my hand. He is high maintenance, but the one thing that holds him together and keeps him going is my love for him and my perseverance to never ever give up on him. And I will protect and defend him till the day I die. And he knows that. The good news is, he’s maturing, and doing a lot better emotionally this past year, thank God.
I have been very proactive and persistent in seeking answers, help and relief for Trevor especially over the last few years as he’s been in elementary school. I have consulted with an army of doctors, who in my opinion only scratch the surface without looking outside the box, medicate him and send him on his way. He missed 30 days of school last year with debilitating symptoms, and the school put us all through hell. I’m strong for him, yet exhausted and desperate for some relief. Sometimes, all I want is to justify his being alive and hope people will be more compassionate to his sensitivities. My perception is that people seem to not believe that he is in pain, whether emotionally or physically, and he and I have been accused of lying. That’s eating away at both of us.
My main reason for writing is for my son. I’m desperate to get him the attention he needs to really connect the dots and get some answers before he enters his teen years. My hope is that Dr. Phil can make me feel assured that I’m doing the right thing in the best interest of my son, or tell me if I’m not. I pray every day for some revelation or new resources to help Trevor. I need to understand more about his brain, and he’s ready to learn more too. Are his injuries at 4 months affecting his life now, or is everything Trevor experiences a fabricated story or psychosomatic (as some people think)? I would love to meet Dr. Lawless and the Neuroplasticity Center. And if I ever make it to Texas, to pay a visit to the Shaken Baby Alliance, who was there for me during those first few weeks of him being shaken when our lives took a traumatic and dramatic turn for the worse.
My second reason in asking for your help is for me. I suffer everyday with PTSD. I was falsely accused for inflicting this abuse on Trevor, and the system FAILED me. Details on that is further down in this letter. It’s hard for me to deal with school harassment and bureaucracy, and even still living in my same house just blocks from the daycare provider’s home. I’m triggered just seeing an ambulance during rush hour traffic, or a 4-month-old baby. Although I am usually an open book, I’ve been stuffing my feelings for 10 years now, and I can’t do it anymore. People commend me for being strong, happy and a great mom to Trevor. But someone touches a sensitive subject and I’m defensive, and weakened to tears. I’m sick of always feeling like I have to justify Trevor’s or my actions. I had to overcome the ultimate unthinkable blow to my motherhood, and I’m not going to let policy, bureaucracy or insensitive people take me down again. I’m always seeking ways to continue to lead a full and productive life, and be the best influence on my son as I can possibly be. I continually face walls of adversity, both his and mine, and perceived judgment from others on how I handle things with Trevor. But the bottom line is this: I don’t know what really happened to Trevor on December 2, 1999 when he was abused, since the daycare and her family didn’t have to say a word in court. I don’t know what ever happened to the daycare provider, if anything, and I honestly don’t even know that she’s the one who did it -- it could have been her husband or anyone else in that home. All I do know, is it happened while in her care; and Community Care Licensing did nothing. I know that the State put me through pure hell, and what’s going on with Trevor today is REAL. I’m seriously troubled with the thought that the daycare provider who did this to Trevor is still out there, free and clear. They were able to walk away and move on with their lives with no questions asked. We recently found the daycare provider on Facebook with a Masters in Education, and her husband a Sacramento Police Officer. Undoubtedly, both are still working with children. WHAT is wrong with our system??????
Hopefully, continuing to share my story we can uncover some answers to this mystery and save the life of an innocent child in doing so.
I know this is a long letter. I can’t help it. You can stop here, but I hope you’ll have time to read on to see how this story began.
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Go back 10 years. I returned to work after staying home with Trevor for 3 months. I worked for 19 years in Public Relations/Foundation for a local medical center. I dropped Trevor off at the licensed daycare provider’s home at 7:30 am, and spent the day working a holiday hospital fundraiser, which included escorting children through a festival of trees and visit with Santa Claus (who happened to be the daycare provider’s grandfather). When I got off work, I went to go pick Trevor up around 4:45 pm. As I approached the daycare provider’s home, I noticed an ambulance out front, which only caused some concern, since the daycare provider’s husband was an ambulance driver. As I quickly approached the porch, I heard, “There she is now.” I arrived to find my son unconscious. The paramedics put him on my lap, onto the gurney and flew out the door back to the hospital where I work after signing a release in case Trevor were to pass before arriving at the hospital. It was the worst ride of my life, and I had no idea at that time it would be a life sentence from that day forward. With a life-threatening situation on the ER’s hands, and thanks to a quick CT scan identifying the hemorrhaging, they quickly transported him to a children’s hospital, better equipped to handle pediatric trauma. My hospital co-workers comforted me while I couldn’t help but fear the worst.
About 4 hours later, it was determined that Trevor suffered severe brain hemorrhaging and retinal hemorrhaging. He had seizures and gaze paralysis. His outlook seemed grim. Doctors were aloof. His father and I had no clue what was wrong with Trevor or what was going on. He was in PICU for 10 days, while eventually we learned that his diagnosis was Shaken Baby Syndrome, or “non accidental trauma”. Or in terms that most people understand: CHILD ABUSE.
It makes sense that it happened while in her care. I dropped Trevor off around 7:30 am, and picked him up at 4:45. BUT, 4 days later, Children Services quickly detained him, and charged me and my husband with child abuse. We could no longer see him in the hospital, didn’t know if he would survive, and couldn’t even be with him when our pastor came to pray for him. While we wanted to do everything we could to get to the truth and find out what happened, we were advised to have no contact with the daycare provider, and our focus had to be on defending ourselves at this point, and I’m talking immediately. After 10 days, he was released from the hospital, and I worked my tail off to get my parents guardianship over my baby, rather than going to a foster home. We went 4 months without my child in my home, with only supervised visitations. Meanwhile, the State of California slammed us with count after count, up to and including permanent removal of parental rights – twice! As court proceedings continued on for 4 months, we also had to try to keep our jobs and highly visible positions in the community, without being a PR risk. We had tons of support, but some people did have strange reactions, which I guess is normal for someone accused of such a hideous crime. We struggled to keep our marriage together while Trevor lived with my parents, come up with finances for extensive legal and medical bills, and endure Trevor 1st Christmas – with out him. As the New Year 2000 came, he still wasn’t home, and they put him on MediCal, and wouldn’t even let me be with him for his brain surgery.
The agony continued as DCS demanded we take parenting classes, an anger management program, and presented us with some despicable “offer”, or in our case, what seemed like blackmail. They even conducted an adoption assessment on him - ready to throw him right into the system. This was right on the heels of President Clinton signing a bill to fund quicker adoptions. Their attempt to rip my baby right out of our loving arms was beyond anyone’s wildest imagination. No one could understand. Not even the Doctors, nursing staff, hospital social worker, therapists, and in some cases, DCFS own case workers. The whole situation spiraled so far out of control and all we were ever told by DCFS was “were just following protocol”. We went through countless case workers, and not one single one believed we had anything to do with injuring Trevor. This all came out in the trial as well.
Everyone would ask: “What happened to HER” – the daycare provider? Well, she took the 5th amendment in the trial against us. And then she and her family were long gone. Up and moved. They rented their house in our neighborhood – and now they were gone.
We somehow managed, through the grace of God and a ton of legal fees and medical bills, to prevail, and we got our baby back. The judge in our trial heard not one shred of evidence that would lead anyone to believe we were responsible for his injuries. We never even had to present our side, we only went on the stand for the prosecution. After the state presented their side, the case was dismissed. The judge declared the trial over after 4 months of hearing about the daycare provider’s deception, and after the medical testimony of the treating Neurologist, and my pediatrician who testified that the “mother walks on water”. Anyone in their right mind would look at and say “we have to go after that woman; we have to know what happened to this baby. And we have to make sure she is never around anyone else’s children again.” Nope. Not one darn thing was done to her that I know of anyway. But our focus had to be on our family, and reestablishing a bond with Trevor, who missed out on critical attachment to his mother for those first 4 months.
Thankfully, Trevor wasn’t blind, as we were told he might be, but later learned he was considered legally blind his right eye. He had no broken bones, and no one really paid much attention to his neck. His seizures were managed, and the shunt in his brain help resolved the internal bleeding. He had no visible evidence of his injuries except a shaved head from his brain surgery and residual effects of his brain damage. He was living with my parents, and progressing well. Unlike my marriage!
A year or so later, we tried to file a civil suit against her. Couldn’t do it. We reached out to several legislators, and finally authored a law, Senate Bill 819, (2001). This law was not in place for us, so we were basically SOL in taking any action against her.
My husband and I were invited to speak at the International Child Abuse Conference – not about our baby, or shaken baby, but on the topic of “WHAT WENT WRONG”.
(I have it on video tape.) My attorney then became advocates for finding out what happens to us now that all charges have been completely dropped, but we still appear on the National Child Abuse Index. As far as I know, I’m still on it today. I began sharing my story with local Kiwanis, Rotary, Jaycees, and everyone that would listen. This was a real-life story that took place in our neighborhood, not something you only see in a Lifetime TV Movie (although I’d like to write one!). My husband was a little more private so I tried to move on with our lives. And my child was my number one priority.
Another year later, Trevor’s father, with no notice or warning, left the marriage and our home. I have been raising Trevor alone ever since. I made certain our divorce was amicable, (even though I didn’t want to, the way he left) and Trevor continued to see his father. Don’t get me wrong, his father had NOTHING to do with this. The evidence presented in our trial so clearly points to the daycare provider.
So here we are today. Trevor suffers a little more and more as he continues to develop and his body grows. I sense that the countless number of medical professionals that Trevor has seen in recent years just can’t see beyond their specialty, or make sense of what’s really going on with Trevor. We go from one to the next with no coordinated effort at all, except my endless quest for someone to look at the whole person.
Call it mother’s instinct. I know my son so well. There is something going on with him, outside of sometimes lacking coping skills, being raised in a single-parent home, having severe headaches, or being labeled with a “mood disorder”. There have also been accusations, especially in the past few years, of him making up his illnesses to manipulate me, me babying him, and him getting away not going to school. I have worked hard and I think have bridged all those gaps, and continue to have an army of support. I have a 504 plan in place for school, I have an attorney and personal advisor to help me deal with the school and their insane systems and approach to dealing with Trevor’s ails and medical absences. I’ve been in therapy to help me deal with the PTSD. I have family support, however some don’t live it like me and my parents do. I had to eventually leave the hospital after 19 years, which ended in the oddest of circumstances, but I currently have an awesome job, with tremendous support, and I am working to pursue my goal of sooner rather than later moving out of my neighborhood and starting to make new refreshing memories for me and my son, closer to my parents, his school and friends. While I feel ever so blessed to own my home, it’s a house with some pretty awful memories, some “defining moments” and it’s too close to “her” house. Both Trevor and I feel the need to move on.
I was pretty organized during all these years – and am the document queen. I have every letter, report, film, transcript, record of conversations, above and beyond, which proved in my case to serve me well. Your producers would love this one. I hope that someday, I can get the chance to tell my story to all the moms out there: what’s possible in your own backyard, how the system failed me and my child. And once again stand up for the rights of a child, who now is old enough to have a voice. I sure wish he did back then. And maybe we can save another child from the perpetrator. And who knows, maybe Trevor’s dream to be on TV will come true after all!
Regards, and from deep “inside my heart”,
Catherine
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