On Friday, my daughter underwent a procedure of Botox injections to help with the rigidness she has in some of her muscles as a result of her brain injury. The hope is that the Botox will help to numb some of the muscles causing the tightness, which will give Riley more use of her limbs. Long- term thought is that the brain will create new “pathways” relating to the muscles in a comfortable state, so she can be weaned off the Botox- retraining the brain to send messages to tell the muscles to stay relaxed …
I always have so many ideas about what to write for this blog- looking back, we’ve been through so much these past few years, I could write about every feeling and experience to exhaustion. I chose to share this information about Riley because this seemingly simple appointment brought me through so many emotions. This was the first procedure Riley has endured since she left the hospital two- years ago. It was very difficult for me to bring her back into a hospital, to put that gown on her, and to watch them wheel her away from me and into the operating room. I knew that this procedure wasn’t invasive at all, that they were only using the anesthesia to make Riley comfortable since she was receiving so many injections. There was no IV, no breathing tube. All logic aside, as much as I told myself it would be OK, it was still hard. I found the time moved extremely slowly during her only ½ hour procedure, and I kept watching the clock…
Riley’s procedure went well, and she recovered better then expected. She has been a trooper through this entire ordeal, and this time was no different. I tell myself that at her next appointment 4 months down the road that I will feel differently- it won’t be a big deal, that she will be fine. However, realistically I know that the moment we arrive at the hospital, I will feel the same way I did on Friday. And I think that’s OK. It’s the result of my experiences, and those cannot be changed. I love my daughter and will continue to be strong for her despite my own emotions. I must learn to embrace the fear because it is now a part of me…
~Lisa
2 comments:
Lisa, I am beyond inspired by yours, Brad, and most of all Riley's strength through all of this--as much as we all walked the same paths in life through different periods, we all have a common bond whether it be the area we live in, the lives we grew up in,irrelevant-- my heart and prayers go out to your beautiful family--- I am supportive toward the future, and am optimistic to overcoming the obstacles of the inevitable, whole-heartedly, and successfully--- What doesn't destroy us, makes us stronger--I know you already know that, it's a given--- Good Luck, God Bless!!! TAMARA
Lisa,
I am so glad that things are going so well for Riley. I have heard of Botox injections. They actually want to try to use them only Trevor to try to help with his secreations. He wears a motion sickness patch and that doesn't even come close to sunsiding the problem. He cannot fix his swallow. His G-tube has changed to a G-J tube and it looks like the speech therapists at his nursing home don't have much time to spend with him. But I am so glad that Riley is making these great strides it makes my heart feel good when one of the kids can do better even if it isn't my Trevor. Way to Go Riley.
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